Rest

Lois is OK but having a lot of discomfort. She has a hard time keeping food down the past few days. Hospice has outlined a plan for her care and we are giving special attention to making sure she is as pain-free as possible.

Many thanks for all your prayers, calls, cards, etc. You are a blessing!

We’ll post more details later this week.

I received a harsh but well deserved chastisement last week.

It’s true. The past few weeks have been intense and I haven’t taken any full days off since July 4&5.

Therefore, I am taking days off for the rest of this week and through (US) Labor Day. I hope to be back “up to speed” by Tuesday, September 8.

God Is Rock-Firm and Faithful – an update on Lois

Do we place our expectations on God? Are we so arrogant to think we can advise Him – tell Him what He ought to do? Could it be that we have convinced ourselves that it’s “OK” to make plans and just assume that God will bless?

James has a harsh warning: Now listen, you who say, "Today or tomorrow we will go to this or that city, spend a year there, carry on business and make money." Why, you do not even know what will happen tomorrow. What is your life? You are a mist that appears for a little while and then vanishes. Instead, you ought to say, "If it is the Lord’s will, we will live and do this or that." As it is, you boast and brag. All such boasting is evil. James 4:13-16 (NIV)

We continue to learn that God wants all our expectations, all our hopes, and all our plans. He expects us to trust Him for every minute of every day. Totally – nothing held back. We are learning to say, “OK, God, we know our very next breath is in your hands, now take that knowledge and make it a reality in the way we live.”

Wednesday we had a scheduled CT Scan, lab work, and a consultation with our oncologist. This is what we learned:

· Most of the tumors have grown. The largest two look the same size as June 24, but the small ones (there are scores) have grown – some by as much as a centimeter. (If there are 40 tumors and each one grew by half a centimeter you can imagine how much that increases the size of the liver)

· The CEA tumor marker is 29 – up from 18.6 two weeks ago and 13.4 on June 24.

· The intermittent fevers Lois has been spiking are tumor fevers. Nothing can be done except treating the temp with Tylenol and Ibuprofen.

· The cancer is no longer contained in the liver sac. There are tumors growing outside the liver.

The conclusion: The Chemo is no longer working and there will be no more.

You may recall that over six months ago there was an extensive study of cultures from the tumors they removed in the surgery in May of 2008. That lab work resulted in a list of Chemo drugs which would be most effective with the exact type of cancer in Lois. We have tried all the combinations. There is no other medical protocol to pursue.

Our Dr had a difficult time admitting we were done. In the past 14 months we’ve become friends and the difficulty did not come from pride or from missing out on some personal gain but because he realizes that now it’s only God who can make a difference.

We’ll begin working with a local Dr to manage symptoms and pain (when it comes) and continue to consult with Palliative care specialists. Since both Lois and I have taken the Hospice Volunteer training, we anticipate involving them when the time is right.

Over fourteen months ago, when Lois was diagnosed and had surgery, we began preparing for this. As we shared the news with Joy and Tony, Peter, and Kari and Jeremy, we all had an overwhelming sense of peace. We know that God is in control. We haven’t been fighting this cancer, just learning to live with whatever God allows in our lives.

We’ll take one day at a time. We’ll watch for the “signs” from Lois’ body about what the cancer is doing and let God be God. The prognosis from the medical community is 2-6 months. Only God knows the exact number of days. For right now, we won’t change any plans for retreats or conferences or working with pastors and churches. We will trust God! He is rock-firm and faithful!

When I was beleaguered and bitter, totally consumed by envy,

I was totally ignorant, a dumb ox in your very presence.
I’m still in your presence, but you’ve taken my hand.
You wisely and tenderly lead me, and then you bless me.
You’re all I want in heaven! You’re all I want on earth!
When my skin sags and my bones get brittle, God is rock-firm and faithful.
Look! Those who left you are falling apart!

Deserters, they’ll never be heard from again.
But I’m in the very presence of God
— oh, how refreshing it is!
I’ve made Lord God my home. God, I’m telling the world what you do!

Ps 73:21-28 The Message

Three Words

One of the receptionists walked up to us in the waiting area and said, “The Doctor you’re scheduled to see is running behind by at least 90 minutes (it actually ended up being four hours). If you want to go for lunch just come to the desk and get a pager.”

We checked the time. The Melrose Dining Room, where we like to eat in the hospital, wouldn’t open for another fifteen minutes. At 11 am I went to the desk and asked for a pager. Based on previous experience, when she handed it to me, I asked her to test it by sending me a page. They tried. Nothing happened.

The receptionist took another pager from the basket and tried that one. Nothing.

She asked one of her co-workers for help. Together they tried a third pager and, again, it didn’t work. One of them opened that pager and discovered it didn’t have any batteries! The first pager was then opened and it didn’t have any batteries either! We all laughed about the possibility of a “battery thief.”

After some healthy laughter we got a working pager and went to an early lunch.

Lois was really tired and there wasn’t much conversation at lunch so I had a lot of time to think about what just happened. As Christians we can make some obvious, well-worn connections: Without Christ we have no power; OR Stay charged up in the Word, but that was not the direction my mind took.

When this took place we had already been in the waiting area for over two hours since we have to arrive 45 minutes before we see the Dr so lab work can be completed. It was plain that Lois’s Dr wasn’t the only one running late. We had witnessed (heard) several people who let their frustration turn to anger and then took it out on the receptionists. Their tone of voice, volume, and body language was unmistakable.

I’m quite certain that when I approached the receptionist to get the pager she was bracing herself for yet another angry patient who was upset about waiting. When I was the first one to laugh about the battery situation, it quickly became contagious. The whole atmosphere of the reception area changed.

I thanked her for the pager and she smiled and said, “No, thank you for being so understanding.”

Now, I have to admit, I had a choice. I could have chosen to be just as upset as anyone else. It would’ve been easy to justify with, “if enough of us let our frustration be known, maybe someone will do something!” Every member of my family and many of my friends can attest to the reality that I am capable of letting my voice be heard and opinion known. Many a customer service rep has been on the receiving end of my frustration. (Something I’m not that proud of.)

As followers of Jesus, do we have a responsibility to be quiet and patient? To introduce laughter in tense moments? To show restraint and kindness? Even when we don’t feel like it? Or especially when we don’t feel like it?

I’m not suggesting that we use this as an excuse for letting people walk all over us or take advantage or overcharge or fail to honor warranties. However, I am suggesting that we ask God for truckloads of grace and discernment so that we know the proper time and place and even select the correct individual to voice our complaints to. Isn’t that part of being “salt and light” in this world?

I want my behavior in every situation to be of such a high caliber that those around me want to know more. Not in a way that’s patronizing or seems fake, but with genuine humility. Your character; my character reflects the one whom we claim to serve.

There are three words I hope define my relationship with Christ as lived out in my family, with friends, in interacting with those I serve, in all my life. Those words are: Obedient. Faithful. Humble.

Infusion #28

It was a long day. We arrived at the Hospital at 8:50 this morning for lab work scheduled at 9:15. We were scheduled to see the Dr. at 10 but that didn’t happen until just before 2 pm! We left the hospital at 5:45. The labs were about the same as two weeks ago. Lois’ hemoglobin is still on the low side but not so low as to require any action. The infusion and injections went in without any reactions (another gift from God) and the fanny pack pump is hooked up. (Yes, we checked: the clips are undone!)

Lois and I have both noticed some hair loss the past two weeks. The Dr confirmed this is not too unusual and might just be short-term. In other words she might not lose all her hair. On the other hand, after 13 months of chemo infusions the hair loss is not a surprise.

Pray for Lois (and for me). We arrived home at 8 pm and within 30 min I had the car loaded and was on the road for a four hour trip to Kansas City. (That’s where I’m writing this at 12:45 am) I have meetings and appointments for the next 11 days in MO, OK, IN and OH. Lois is OK with all this but I don’t really like being gone right after the big infusion and while she still has the fanny pack pump running. Even though she hasn’t experienced any major problems . . .

So we trust the Lord. I’ve been thinking a lot about Ps 31 while I was driving. I’m stuck on vs 3: “Since You are our rock and fortress, for the sake of your name lead and guide us.”

God is at Our Side

The past two weeks we have experienced God at work in so many ways that our hearts are full of praise and thanksgiving. We are reminded of Psalm 24:5-6, “God is at our side; with God’s help we will make it. This is what happens to God –seekers, God-questers” (My paraphrase).

Two weeks ago today we discovered that the infuser, what we refer to as the fanny-pack pump, had not been started properly; the result of which was that I disconnected it on Sunday morning, July 12, flushed the lines, injected the heparin and removed the needle! All went well and my worked passed inspection! That was an answer to prayer because Lois and I really wanted her to be able to come to camp. However, the delay meant Lois dealt with the effects longer but still had a great week and was able to attend all the worship services!

On Thursday evening, July 16, she spiked a fever and woke up with it on Friday. One of our key staff, a woman who is very sensitive to God’s leading, took a group to our room and laid hands on Lois and prayed for her. The fever broke! Another answer to prayer and as a result Lois felt well enough to pack and load the car.

We enjoyed a visit from Lois’ sister, Beth, and her daughter Jordan who arrived on Sunday evening. Since Beth was here we had family over on Sunday, Monday, and Tuesday evenings and, in another answer to prayer, Lois had the strength to enjoy the whole family.

Wednesday morning Beth and Jordan left to drive back to Colorado Springs just a few minutes before Lois and I had to leave for Iowa City and Infusion #27.

The lab work was OK but nothing to be too excited about and so the Dr. ordered an injection to give Lois’ system a boost. He also told us the CEA number, the tumor marker, was elevated some and confirmed that we would have a CT scan and full labs on August 19.

The infusion and fanny-pack pump went in without any challenges – another answer to prayer! Lois is tired and has some slight side effects but nothing serious. Again, we praise God for His goodness.

Thanks for praying with and for us.

Let God Be God

Carl* had lots of questions. All week at camp he was asking questions of anyone who would listen. He talked to his counselor, me, our speaker; and they were sincere questions.

” What about pain? Dinosaurs? Wars? Aliens? Divorce? If God loves us, why does he let evil exist? How did we get evil and satan in the first place?”

A lot of the questions don’t have concise answers and many don’t have any answers at all! But the search; the quest makes reaching conclusions even more personal and rewarding. Carl wasn’t the only one with tough questions. They came from campers and staff alike.

We live in a broken world and the influence of secularism makes crossing the line of faith significant and life-altering. But isn’t that the way it should be?

Over and over again I found myself thinking and saying out loud: “Let God be God.”

Our finite minds can’t wrap around the thoughts and plans of an infinite God. Our warped understanding of love cannot grasp God’s perfect, unconditional love. Our sin-scarred emotions make taking faith-steps painful and difficult.

But when we let God be God He opens our eyes to see Him in new and wonderful ways; He softens our hard hearts to accept His forgiveness; He opens our ears to hear his words of grace; and He gives us the courage to unclench our fists and give Him control of our lives.

God worked the miracle of transformation in campers and staff and none of us who “let God be God” will be the same.

One of the personal transformations that I witnessed was in my wife, Lois. Everyday her strength seemed to increase and, although she rested often, she was able to attend the worship times and “hang out” at the office. Then, on Thursday evening, she spiked a fever. Friday morning I wondered what the day would be like. One of our staff noticed that Lois did not attend the staff prayer time in the morning and took a couple of other staff and campers and they went to our room and prayed for Lois.

Within an hour the fever broke and Lois felt much better! God is so good! Lois was even able to pack our personal luggage and load the car later that afternoon!

We are now recovering and working on follow-up and re-packing all the supplies for next year. Thanks for praying for and with us. We join with you in a new commitment to let God be God!

Heavenly Father, We ask You to fill us with Your Holy Spirit as we submit our bodies as living sacrifices. We commit ourselves to lives of obedience as we daily renew our minds in the living Word of God. Amen.

*Carl is not his real name!

Infusion #26

On Wednesday, July 8, we arrived in the University Hospital in Iowa City for what we anticipated would be a short day. Lois had an appointment to have lab work done and they go right to the Infusion Unit. No appointment to see the doctor. Then we waited an hour and fifteen minutes for a nurse to access Lois’ port and draw the blood for labs. Then we waited some more – ninety minutes for the labs to come back and for an opening in the Infusion Unit. I keep reminding myself that when we go to a world-class hospital the mantra is, “hurry up and wait!”

At 2:20 all the bags of Chemo and related drugs were empty and the nurse hooked up the fanny pack pump for the 5FU that drips for 46 hours. We headed home.

Friday morning Lois woke up and sensed that the fanny pack didn’t feel any lighter. She looked at the pump and it was still full! We discovered that there were two clips this time and one of them was still crimping the tube! (We hadn’t noticed two clips in the past and wonder if in all the juggling of the multiple tubes they use to infuse the chemo drugs an extra was added.) We called the nurse and started the chemo.

These situations remind us that we are not in control and that’s doesn’t mean the medical community is either! Instead, we need to be awakened to the reality of God’s control. Jeremiah was brought face-to-face with this reality when God said, “Let not the wise man boast of his wisdom or the strong man boast of his strength or the rich man boast of his riches, but let him who boasts boast about this: that he understands and knows me, that I am the LORD, who exercises kindness, justice and righteousness on earth, for in these I delight," (Jeremiah 9:23-24).

Lois is feeling well enough that she is determined to go to camp with me and that includes a special retirement service for a wonderful pastor on Sunday morning. So, when the fanny pack pump finishes about 6 am on Sunday, we’ll be in Excelsior Springs, MO! That means I get to “de-port” my wife! I’ve watched the nurse do this several times and it doesn’t worry either one of us. Chalk it up to another new experience!

We appreciate your prayers this coming week as we lead the team at Tri State Camp. We’ll be at a new facility (for us) just south of Ottawa, KS on I-35. Lois and I will have a motel-like room in which to stay and she decided she can sleep there just as well as at home!

Look Up

The faithfulness of God should never take us by surprise. His power and grace and mercy at work in our lives should not be unexpected and our response should always be grateful trust and humble obedience. Somehow, what we know should be isn’t always what is! Instead, it’s all too easy to be distracted; caught up in the busy activities of life, forgetting that God holds everything together, gives us the next breath and is the giver of every good and perfect gift.

Paul, in his concern for the believers at Colosse, addresses this ageless problem of getting distracted when he writes, “So if you’re serious about living this new resurrection life with Christ, act like it. Pursue the things over which Christ presides. Don’t shuffle along, eyes to the ground, absorbed with the things right in front of you. Look up, and be alert to what is going on around Christ—that’s where the action is. See things from his perspective.” (Colossians 3:1-2 The Message)

The penetrating question is, am I serious about living a life marked by the resurrection of Christ? Existing is not an option. Maintaining is unacceptable. The very core of living in the resurrection means we cannot stay the same but must move forward.

Chasing that which Christ modeled as important is now the priority. That means our attention is drawn to single parents and their children – the 21st century equivalent of widows and orphans. It means we learn how to love the people who look different than we do; who get food stamps and are on government programs for housing and medical care. Being like Jesus means we take up the causes of those who have experienced injustice; those who have lost hope that there is anything good in this world.

Even while we are working with “the least of these” we can’t afford to get dragged down in the muck with them and we certainly can’t allow ourselves to have a pity party about our own circumstances no matter how desperate they might be. As the writer of Hebrews teaches us, we have to “keep our eyes fixed on Jesus.”

We need to keep our attention focused on the action and Paul reminds us that the action – the really important stuff of life – is going on around Christ. And we, the church, are the body of Christ! This requires the best of our time, talents, and treasures! If we are serious about pursing a Christ-like life, about being where the action is and living life to the full, then we shouldn’t be surprised when it requires everything.

It’s so easy to forget that God through Christ is the object of living. So easy to be distracted by our hectic lives, packed schedules, email, facebook and twitter that we fail to live the resurrection life.  It’s also possible to schedule so many programs and events at church that we begin to isolate ourselves from the very people Christ commissioned us to reach.

Somehow, what we know should be isn’t always what is!

The adventure of the life of a Christ-follower, this faith journey, requires our constant attention, vigilance, and discipline, and although this isn’t easy, it’s our continuing responsibility to “look up, and be alert to what is going on around Christ.”

Infusion #25

On Wednesday, June 24, Lois had Chemo Infusion #25 and the fourth one since we started the new the new regimen, Folfiri. We arrived in Iowa City on Tuesday evening so we could be at the hospital for lab work at 6:30 am followed by a CT Scan. We met with Dr. Halfdanarson at 10:30 am and learned that the CT Scan showed no change; the tumors in the liver haven’t changed at all since the first of May. In fact, when the radiologist’s report came through later in the day, he thought a few of the tumors may be slightly larger.

The CEA number, that tumor marker we keep track of, went from 13.8 to 15.4. The Dr. waved that off saying a one point change is not unusual and he wasn’t overly concerned with that. We will continue on the Folfiri regimen and plan to do three more infusions before another full set of labs and a CT Scan.

Once again, the drugs they give Lois to mitigate side effects enabled her to sleep for most the infusion time. Because she is tolerating the chemo so well, they were able to speed up the delivery so that the entire infusion was a little more than three hours. I really appreciate the Ethernet connection in the room which helps me use the wait to be productive.

Lois is feeling well enough this morning that we went over to Joy and Tony’s house for a few minutes to be with Broc who is celebrating his 5th birthday today!

Thanks for praying!

Update on Lois

Lois is doing quite well and we rejoice in answered prayer! First of all, the ankle she sprained so badly is healing and she is able is walk. Being mobile and not having to wait for Jim or someone else to do everything is a great improvement! This is God at work.

In addition, the lab work on Wednesday included the CEA number – the “tumor marker” which is used as one of the methods for measuring whether or not the cancer is advancing. The first part of May the CEA number was 18.4 and now it’s 13.8. Obviously, God is at work either using the new Chemo cocktail or any other supernatural means to slow the advance of the tumors in Lois’ liver. Again, this is God at work.

Finally, Lois had infusion #24 without incident. No severe diarrhea, no vomiting, no reactions. Yes, she is still dealing with neuropathy in her hands and feet (the feet are much worse than her hands) but that is really a minor side effect. Two weeks ago the infusion produced some light nausea from day 2 thru day 5 but Lois only vomited once. Lois’ appetite is OK but we know the next few days she will not be very hungry. Those are side effects we can deal with. We recognize this is God at work.

Your phone calls and cards and emails are a great encouragement to us and remind us often of the debt we owe for your friendship and partnership. Thank you for praying with us and for us!

Encouragement to follow Jesus better!